Marriage and schizophrenia

I’ve been married for 30 years and it has definitely been the hardest and best thing to ever happen to me/us. As I listen on loop to Ed Sheeran/Taylor Swift song, The Joker and the Queen, I am reminded how much we have been through. From humble beginnings, I was a waitress working night shift, he was my boss, the night manager. If I had known when I met him the first time, I would have been different somehow. But the clenching time came a year later when he crashed his motorcycle, which he got rid of after, I nursed him back to health and fell in love with his caring yet gruff nature and soul…

The hard times have made the good times even more rich. Right now it is a rich time of trips, time at home and exploration of much.

He doesn’t understand my disorder but accepts me for all of it and sometimes it can get pretty rough. Dealing with me psychotic, meeting with a team of doctors at UCLA in 2008, not knowing then how hard the next 16 years would be. Meeting with therapists, learning through experience that we are meant to be together with our quirks, mine more than him haha.

Now that I am stable in mind, body, spirit and our finances, it is even better. Last night and this morning were perfect examples of our unbreakable union.

We don’t sleep in the same bed for various reasons, his snoring, my late night habits etc.. it works for us. But most nights we spend time together in our marriage bed with me massaging him as he falls asleep. We talk about our day and the next, make jokes, make fun of ourselves and discuss our children and granddaughter. It is a good practice we have done for years. He has tried to massage me but he’s too strong and i’m too sensitve so I don’t mind giving him this gift most nights. He says it helps him sleep better:)

So last night we just held each other for an hour with our heads together on the same pillow. I enjoyed this very much. He fell asleep with me in his arms and I started to doze off too but hadn’t taken my night meds so ended up getting up at midnight as he wakes up at the disturbance and asks “where are you going? I love this, he didn’t want me to go away even after an hour of us just being together in embrace. I might have slept there but must have my meds to help me sleep. But the fact that I was tempted to stay was a good feeling.

His energy can be very strong and critical and me being an empath as well makes it difficult and strange at times, wonderful and pure bliss at others. He is also a big softie sometimes and acts like a big baby with many needs which I sometimes meet happily most of the time.

Then at 6:30 in the morning he’s running around the house waking everyone up because he thought there was an earthquake. I remembered that there was a shuttle taking off from Vandenberg airforce base taking off this weekend in the am so he checked on the two adult children who live with us still and went back to bed. In less than 5 minutes he was back to our side of our small home because there was another loud noise. By this time I was awake and got up with only 5 1/2 hours sleep:( He’s back in his bed snoring away undisturbed by anything.

Once I wake up I cannot go back to sleep so I’m like trying to figure out what to do. I journaled about him and now chose to blog about marriage and schizophrenia.

We don’t discuss my disorder much. But he knows when I need my space and when I need to be with him or others. But when I am at my worst, he wishes it all away sometimes with unkind words like- just pick yourself up by your bootstraps, ignore it, you’re fine, don’t think as much. These words are not helpful at all and make me try very hard to be stable at all times, at least as much as possible.

I can write about it now that I am doing well but in the midst of the chaos of my mind, things have never looked bleaker…

That is all I wish to share about marriage and schizophrenia/schizoaffective disorder except for the wonderful newest development in our marriage~ he has accepted that I cannot work and I am at peace in knowing this.

Peace

Victoria